Benjamin was born 10 weeks premature weighing only 3lbs 3oz.
He could be covered with a facecloth, he was that small. As Benjamin got older we realised everything wasn’t as it should be. Benjamin had every test going but no definitive diagnosis could be given. Recently we have discovered Benjamin had a very rare genetic disorder shared by only a handful of people worldwide. Benjamin’s genetic disorder has left him being unable to walk or talk or coordinate his swallowing. Not being able to coordinate his swallowing means Benjamin can’t eat or drink and has to be peg fed. All of his medication is given this way too. Benjamin also has a rare form of epilepsy is partially blind and has major scoliosis of his spine (which at some point in the future he is going to need an operation to try and correct this)
At the moment Benjamin’s bedroom is upstairs and he has to be carried to bed every night and carried down every morning. Benjamin is a big boy now and this is becoming increasingly more difficult for us to manage. We need to build an extension on or house downstairs so that Benjamin can be safe. He so deserves a lovely bedroom downstairs that is suitable to his needs. Despite all of his problems Benjamin is one of the happiest boys you could ever meet. He loves cuddles and holding hands. He loves super simple songs and he is the world’s number one Peppa Pig fan. He is our hero. Please help if you can,so Benjamin can be safe.
Terms and Conditions
All cash donations are held by BLF in restricted funds for Benjamin’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Benjamin and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.