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Laylas Legacy

We are now supporting Layla’s legacy, Layla’s Legacy is a non-profit organisation that was founded in 2016, following the passing of Layla.

In April 2016, Layla was admitted to Freeman hospital for another open-heart surgery; unfortunately, this failed. She underwent multiple surgeries and procedures, then finally a heart transplant in this hospital stay alone. Sadly, this wasn’t enough to save our little girl’s life and she went to sleep forever on 7th October 2016. After living such a fast- paced life filled with love and joy given to us by Layla both in and out of hospital, we wanted to give something back; this is when Layla’s Legacy was created in her memory. We provide many items to families of Ward 23 and PICU within Freeman Hospital, Firstly we provide Journey boxes to every palliative care baby born and welcomed to the unit which help the families be able to document the amazing memories they make together both in and out of hospital, all babies born that come to Freeman Hospital are also provided with a set of 2 comforters so baby and mummy can still feel close together in moments which mean they must be apart. Birthdays are always a milestone no matter how big or small you are so for this reason we provide q party pack to each child spending their special day in freeman, these packs come with banners, balloons, and everything you need to decorate your own bed space/cubicle, not forgetting the cake everyone needs a birthday cake and finally a special visit from a character to wish the children well on their day. This is a very personal touch to each child as we believe in hospital or at home these children matter and should be treated in a way every child deserves to be. We also provide a small gift of a memorial bauble to bereaved families, with pyjamas and blankets on hand should the families need them in their time of need. Please support us in what we do and keep donating to this cause. Without the help from you, we can’t provide these items.

Thank you from the bottom of our hearts.

To follow Layla’s amazing legacy on facebook – https://www.facebook.com/Laylas-Legacy-UK-495802894151707/

To donate – https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/laylaslegacyuk

 

Mission for Macey

Macey Clarke

We would like you all to meet Macey.

Macey is 4 years old and has had an SDR operation to reduce the spasticity of her muscles. However, to make this operation beneficial for Macey she needs intense physio which can be quite costly. We are supporting Macey and her family to raise £30,000 for her physiotherapy.

To follow Macey’s story, you can find her Facebook page here: https://www.facebook.com/missionforMacey/

To donate – https://www.justgiving.com/campaign/missionformacey

 

 

Frankie’s Freedom

Frankie Palmer.

We would like you all to meet Frankie.

Frankie is 3 years old and has cerebral palsy.

We are supporting Frankie and his family to raise £90,000 for an SDR operation which will reduce the spasticity in his muscles. We are hoping this will help him to sit/stand.

To learn how to donate and follow Frankie’s journey like his facebook page here:

https://www.facebook.com/pg/frankiesfreedom14/about/?ref=page_internal

To donate – https://www.justgiving.com/campaign/frankiesfreedom

Jack Jeffreys Fight Against Neuroblastoma

Jack Jeffreys

In August 2017 a few days after his 4th birthday, Jack was diagnosed with Stage 4 Neuroblastoma, an aggressive cancer which mainly affects children under the age of 5. Since then he has undergone Radiotherapy and Immunotherapy. Sadly the tumor has not shrunk. In May he had another painful lump. On 2nd June he started a second cycle of chemotheraly. We need to raise at least £200,000 very quickly to give him the best chance of lifesaving treatment. They think due to his high risk neuroblastoma, antibody treatment is needed. However, it is not funded by the NHS and no child has been accepted by NHS England for funding so it has been either sponsored or privately funded. We are raising funds to give Jack the best possible chance of ridding his little body of this horrible cancer. We all have such power in our social networks to massively increase our fundraising so please share this far and wide to raise as much as possible to help Jack and his family get him the best treatment.

To donate – https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/jackjeffreys1

Facebook – @JackJeffreysFightAgainstNeuroblastoma

 

Maddie Did It!!

Maddie’s family where fundraising £21,000 for an Innerwalk to enable Maddie to get about, and be more mobile.

We are pleased to say, Maddie’s team have succeeded and her target was hit. Maddie’s Innerwalk has now been ordered and is on its way to Maddie.

We we like to say a huge Thank You and Well done to everyone involved.

#AHeroForChloe

Meet beautiful Chloe everyone.

Chloe is 7 years old and has a rare blood disorder Diamond Blackfan Anaemia and needs a matching blood stem cell donor. This means Chloe’s body doesn’t produce red blood cells and needs regular blood transfusions to actually stay alive.

Chloe has recently developed antibodies in her blood and urgently needs a blood stem cell donation.

BUT … a matching donor has not yet been found.

You can register as a potential blood stem cell donor and go on standby to save the life of Chloe, or anyone else in her position.

 

If you’re between the ages of 17-55, please register below.

 

You can also follow Chloe’s journey on her Facebook page

Chloe’s DBA fight #aheroforchloe

 

Huey Humphreys

After seven long heart breaking years of trying for Huey, our dreams came true after multiple failed IVF Treatments. We were going to be a mummy and daddy!  We had a fighter right from the start, something that was simply made to be, not perfect for some but frankly just perfect for us. Huey decided to arrive 14 weeks early, I was bleeding very heavily at home and had to be rushed in to the delivery suit. Huey’s heart rate was dropping and I was actively bleeding, a doctor with glasses said we had to deliver now! I remember the words clearly, clear as daylight.  I looked into his incubator, at my beautiful little boy, fighting for his life, being pumped with medications, more wires than baby! Not one person in that room ever thought he would make the next hour, each hour passed and he was clinging on to life. The feeling of utter helplessness, waiting for something to happen, good or bad. The doctors and nurses were trying there very upmost to help, guide, and comfort us through the truly most horrific time of our lives. Praying and trusting in total strangers to look after the most precious thing you posses, why us? why him? I would not wish this on my worse enemy! You get on the rollercoaster ride of ups and downs, one step forward four steps back and all you can do is hold on for dear life. Huey fought sepsis several times, had blood transfusion after blood transfusion, and has had brain surgery twice, the list goes on and on! After a very long and bumpy stay in hospitals we were finally able to take him home, proving so many people wrong, keep reaching for them stars Huey, you deserve each and every one of them. Huey is showing lots of promise we have just turned two. He is very loved, very wanted young boy. We want to raise as much as we can towards this walker for him. We had a trial today and he even took tiny steps forward, this as you can imagine brought tears to my eyes. We are so very very proud of him. He’s our whole world. x

  

Benji’s Magic Ears

A few weeks ago, we had Benji sign up with BLF to fundraise for cochlear implants. Unfortunately on this occasion the NHS could not fund this and the parents where told they would have to do it privately.
After just a few short weeks of being with BLF, Benji received help from local public, family and friends, the Charity Ninja’s, and an anonymous businessman from the USA. And we have some great news. He has now exceeded his £80k target in just a few short weeks. We are so pleased for Benji and his family.

After doing our calculations, it has come to our attention that Benji actually has slightly more than needed, and his family are requesting we donate the difference to Ear for Alex, another BLF child who is fundraising for an ear reconstruction and to be able to hear. This is estimated at around £9k.
We want to say a huge thank you to everyone who has helped make this happen.

Please follow Benji’s story and watch his new life unfold –

 

Jack Hall

Our beautiful boy Jack is 13 years old and has severe Quadriplegic cerebral palsy due to medical negligence at birth. Jacks under gone lots of surgery throughout his life but he’s a strong boy with lots of potential. We are asking for your help and support to get Jack stem cell treatment that’s not available in the UK. This type of treatment has no known side effects and has the possibility to help Jack increase his abilities. We want to help Jack and realise this is not a cure but feel after years of research this could be amazing for him. This cellular stemcell treatment is not available in th UK yet so we would need to travel to Panama South America for the treatment. After giving birth to our baby daughter in February 2016 we had planned to bank her umbilical cord blood with a private company called cells for life at our own cost to hopefully use as part of siblings cord blood treatment for cerebral palsy at dukes university in America which has been known to give children with cerebral palsy amazing treatments with either there own cord blood or a siblings ord blood but the hospital took to long to give the phlebotomist our baby’s umbilical cord and she only managed to get 2mls of blood plus tissue so this wasn’t enough blood for treatment to go ahead. Stemcell treatment requires private funding at a cost of around £18,000 for the treatment with flights, accommodation to Panama City. We have managed to raise money ourselves but we can’t afford to get it all and if this is a success we plan to take Jack as an ongoing treatment so would need to keep his fundraising journey going and will need all the help and support as possible. We love our boy and won’t give up on him.

 

 

Evans campaign is a success

We are pleased to announce that Evan has reached his £3000 target.

Evans family have been fundraising for the last months to get Evan specialised equipment to make his life a little bit easier. This equipment is not available on the NHS, so we set up a campaign to help family and friends. We organised fundraisers from the area to help Evans team and after only a few short months, we can finally announce his target has been reached and Evan will get the equipment he needs. Evans family wish to thank everyone who helped him achieve his goal.