Text Brad06 + £ Amount to 70070

Ilhan Cancer Treatment Fund

My beautiful son Ilhan was diagnosed in may 2013, with refectory desmoid tumour/fibrosarcoma in his head and neck.

Over the course of 5 years he has received substantial amounts of chemotherapy, 4 different regimes, had maximum proton beam radiation, he has being left with a lot of side effects mainly due too the location of his tumours , he has a tracheotomy for breathing and has a peg tube for feeding and medicines!

Whilst on treatment in June 18 Ilhan had a relapse, this came on all of a sudden in the space of 5 days he went down hill, after a scan Ilhan was immediately placed on a very intense 96 hour regimen of chemotherapy at that time, we were told as a family that it was unlikely Ilhan would recover, that any treatment was too bide us time too make memories, this chemotherapy made Ilhan really unwell but a miracle after a 2nd cycle and a week at home too start the 3rd, my beautiful boy started talking and it only got better by the end of the 4th round Ilhan was back too his old self, this is the tricky part is Ilhan’s heart function was getting low, so we all agreed too switch too a new drug, PAZOPANIB this is a targeted therapy chemo and works by blocking receptors, Ilhan’s tumour is TKI POSITIVE, Leeds children’s oncology have kindly funded 3 months, on the agreement of funding being given by NHS England!! Right now after 4 REJECTED appeals we are left with no option other than too SELF FUND, without this Chemotherapy it is certain that Ilhan will relapse , and be placed on palliative care , WE HAVE NO BACK UP OPTIONS OF IV CHEMOTHERAPY OR RADIATION! This chemotherapy costs around 800 pounds per month!! Please help my beautiful boy we need too raise funds for another 21 months of chemotherapy £16,800, any amount will help!

I am awaiting a letter from Ilhan’s consultant In regards too monthly costing which I will add too the go fund me when received!!

Any money over the amount raised will be donated back too the charities that have supported us over the years!!

 

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Ilhan’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Ilhan and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

 

Future for Maddi

We are fundraising to help get Maddi to St Louis Children’s Hospital in America to have a life changing surgery called Selective Dorsal Rhizotomy (SDR).

Maddi is now 17 years old and was diagnosed over 2 years ago with SPG15 (Hereditary Spastic Paraplegia 15). Its a very rare and life limiting disease and at present Maddi is the only one in the U.K. that we know of. The disease causes paralysis of the limbs as-well as additional neurological symptoms that can affect the eyes, along with Parkinson’s and other brain abnormalities. So far Maddi is still trying to keep up her strength with PT but she can only walk a short distance before exhaustion and pain takes over and her balance has become seriously affected which causes her to fall over.

In the last year now we have been fundraising to help raise money to support Gene Therapy research for SPG15. Work is still ongoing for this therapy in hope of one day it will halt the disease, however, this research takes time and we know there will be too more damage caused to Maddi before it will happen.

The surgical procedure called Selective Dorsal Rhizotomy (SDR) is to try and give Maddi some quality of life and to hopefully keep her walking for a while longer.

SDR is not available in the UK for Maddi’s disease, but the world leading specialist Dr Park at St Louis Children’s Hospital has already treated other patients with Hereditary Spastic Paraplegia successfully and so many CP children with some fantastic results, he has suggested this would be a good option for Maddi.

SDR is a permanent life changing surgery, it takes away almost all of the spasticity. It would prevent bone deformities and contracture that can happen due to spasticity and weakness and improve function. This should then take away the pain and the stiffness that SPG15 causes.

We as a family would really need some support to help raise funds in getting Maddi to St. Louis.

THANK YOU.

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Maddi’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Maddi and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

 

Seany Boy’s Journey

 

Sean is our 10 year old beautiful son, Sean was a perfectly healthy baby in my stomach but during his delivery he got starved of oxygen and as a result of this he now has severe cerebral palsy, Sean is blind, partially deaf, cannot walk, talk, sit up or hold his own head up. He is tube fed, has severe epilepsy, severe scoliosis and his life expectancy is only to his teens.

As we know there is nothing at all that can help our sons brain damage we hope one day we can take Sean to the USA for stem cell treatment in the hope this will better his quality of life.

We have been researching stem cell treatment for many years and know that in the future this will probably be out in the UK to treat people with cerebral palsy but not in our sons life time.

We have currently applied for an expanded access program at the duke university in the USA to use the stem cells which we stored 3 year ago from his siblings placenta as we know these stem cells are best to use as are a 1-4 perfect match to our sons.

We have spoken to a lot of families that have already had this treatment and very soon after they have seen very good progress, such as their child’s vision has improved, reduced seizures/spasms, their muscles less tight, they got a bit head control and really hope that we can get our son this same treatment in the hope it could help him in any way.

We want to give Sean the chance to receive this treatment and to reach his potential in his short life and for it not to be too late where we always wondered if it would have helped him or not.

Our Seany boy deserves this chance in life, he doesn’t want the latest mobile phones or x boxes just a chance to maybe see one day or have less seizures and painful spasms.

This treatment costs roughly £20.000, so we hope to raise this money ASAP.

LETS GET OUR SEANY BOY TO AMERICA FOR STEM CELL TREATMENT.

We already have £7000 raised with the previous charity, so this has been taken off the total x

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Sean’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Sean and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

Reece’s Wheels

My son Reece has cerebral palsy, he has always used a wheelchair, having many different types over the years, the past two have been RGK wheelchairs these chairs have given him so much independence as they are custom built and lightweight, this year our NHS wheelchair service have stopped giving these chairs out as they have made so many cuts to their service, the big problem with this is Reece is really slim and no other make is custom built like the RGK chairs, this is where we need help, these wheelchairs come at a cost £3500 is what we have been quoted and we need help to cover this, this is where you all come in, if we can raise this quickly Reece could have this wheelchair in time for Christmas and be able to carry on being as independent as possible and hopefully do much more than he does already.

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Reece’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Reece and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

 

Cayla’s Fight

Cayla is a happy 4 year old, who is extremely sassy & full of life! She is a very loved daughter, sister, granddaughter and niece.

Cayla was diagnosed with stage 4 high risk Neuroblastoma in July 2018 and is currently undergoing chemotherapy, after a few weeks of feeling generally unwell i took Cayla to our local doctors surgery with tummy ache, we were told that she may have a urine infection. But after the antibiotics failed to make a difference we found ourselves back at the doctors surgery. A doctor had a feel of her tummy and had felt a mass that shouldn’t have been there. Our whole world collapsed. We were sent straight to a&e for scans and blood tests. We were told Cayla had a tumour in her stomach. The days following this were such a blur & we were transferred to Bristol for further testing, they finally reached a diagnosis of Neuroblastoma, a rare children’s cancer that forms in the adrenal gland, only 100 children in the UK are diagnosed a year!

We are trying to raise money for future treatments that are not currently available on the NHS & only available abroad.

The treatment abroad will give will reduce Cayla’s chance of relapsing (once she reaches remission) We will do everything & anything we can to give Cayla the chance to have a long & happy future!

Any donation of any amount is greatly appreciated & will help towards Cayla battle against this horrible disease.

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Cayla’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Cayla and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

 

A Safe Bedroom For Ben

Benjamin was born 10 weeks premature weighing only 3lbs 3oz.

He could be covered with a facecloth, he was that small. As Benjamin got older we realised everything wasn’t as it should be. Benjamin had every test going but no definitive diagnosis could be given. Recently we have discovered Benjamin had a very rare genetic disorder shared by only a handful of people worldwide. Benjamin’s genetic disorder has left him being unable to walk or talk or coordinate his swallowing. Not being able to coordinate his swallowing means Benjamin can’t eat or drink and has to be peg fed. All of his medication is given this way too. Benjamin also has a rare form of epilepsy is partially blind and has major scoliosis of his spine (which at some point in the future he is going to need an operation to try and correct this)

At the moment Benjamin’s bedroom is upstairs and he has to be carried to bed every night and carried down every morning. Benjamin is a big boy now and this is becoming increasingly more difficult for us to manage. We need to build an extension on or house downstairs so that Benjamin can be safe. He so deserves a lovely bedroom downstairs that is suitable to his needs. Despite all of his problems Benjamin is one of the happiest boys you could ever meet. He loves cuddles and holding hands. He loves super simple songs and he is the world’s number one Peppa Pig fan. He is our hero. Please help if you can,so Benjamin can be safe.

Thank you.

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Benjamin’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Benjamin and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

 

 

Frank’s Fight

This is our beautiful son, Frank.

After noticing Frank had a swollen eye on 12th January we made several trips to various hospitals until he was finally diagnosed in February 2018 with high risk Neuroblastoma, a rare and aggressive cancer. The devastating news has turned our world upside down but thankfully, Frank is responding well to the very invasive treatment he has had and the cancer is shrinking away. Although this is good news, Frank still has a lot more treatment to go including radiotherapy and immunotherapy after already undergoing major surgery and chemotherapy. Neuroblastoma has a high relapse rate so we are trying to raise £200k so that Frank can receive pioneering treatment in America which is designed to stop the cancer returning. Frank has been so brave throughout it all and has taken everything in his stride. We just want to give our amazing boy the best chance of living a long and full life.

Thank you xx

 

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Frank’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Frank and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

Mission for Macey

We would like you all to meet Macey.

Macey is 4 years old and has had an SDR operation to reduce the spasticity of her muscles. However, to make this operation beneficial for Macey she needs intense physio which can be quite costly. We are supporting Macey and her family to raise £30,000 for her physiotherapy.

To follow Macey’s story, you can find her Facebook page here: https://www.facebook.com/missionforMacey/

To donate – https://www.justgiving.com/campaign/missionformacey

 

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Macey’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Macey and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

 

Frankie’s Freedom

We would like you all to meet Frankie.

Frankie is 3 years old and has cerebral palsy.

We are supporting Frankie and his family to raise £90,000 for an SDR operation which will reduce the spasticity in his muscles. We are hoping this will help him to sit/stand.

To learn how to donate and follow Frankie’s journey like his Facebook page here:

https://www.facebook.com/pg/frankiesfreedom14/about/?ref=page_internal

To donate – https://www.justgiving.com/campaign/frankiesfreedom

 

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Frankie’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Frankie and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.

Jack Jeffreys Fight Against Neuroblastoma

Jack Jeffreys

In August 2017 a few days after his 4th birthday, Jack was diagnosed with Stage 4 Neuroblastoma, an aggressive cancer which mainly affects children under the age of 5. Since then he has undergone Radiotherapy and Immunotherapy. Sadly the tumor has not shrunk. In May he had another painful lump. On 2nd June he started a second cycle of chemotheraly. We need to raise at least £200,000 very quickly to give him the best chance of lifesaving treatment. They think due to his high risk neuroblastoma, antibody treatment is needed. However, it is not funded by the NHS and no child has been accepted by NHS England for funding so it has been either sponsored or privately funded. We are raising funds to give Jack the best possible chance of ridding his little body of this horrible cancer. We all have such power in our social networks to massively increase our fundraising so please share this far and wide to raise as much as possible to help Jack and his family get him the best treatment.

To donate – https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/jackjeffreys1

Facebook – @JackJeffreysFightAgainstNeuroblastoma

 

Terms and Conditions
All cash donations are held by BLF in restricted funds for Jack’s campaign.
All fees are paid for by BLF general funds.
BLF will hold funds on behalf of Jack and pay invoices directly.
In the event of the child not needing funds raised, BLF will retain 50% of the funds raised for their general charitable purposes such as grant making, fees for funding platforms etc
Parents will then be given a choice to donate the remaining 50% to an already registered children’s charity of their choice.