Henry has Diamond–Blackfan Anaemia (DBA), an extremely rare and life-threatening genetic disorder, meaning his bone marrow is faulty and cannot produce enough red blood cells to sustain life. This means Henry has regular blood transfusions to keep his red blood cells topped up, this is a temporary fix and can cause a handful of other problems. The only possible permanent fix for DBA would be a bone barrow donor so we supported Henrys family to campaign for people to sign up to the DKSM register.
After months of campaigning a match was finally found for Henry! He has now had the transplant and is going through the necessary treatment to make the match work.