Amy Tinkler

 

 

 

 

 

 

 

We are absolutely delighted to announce our brand new Patron!

AMY TINKLER.

 

 

 

I have been speaking with Amy a lot over the last few weeks, chatting about Bradley, and his amazing legacy, and I am thrilled to say that she has very kindly agreed to be a Patron for the Bradley Lowery Foundation.
Bradley will be smiling from ear to ear to see Amy working along side us.
Amy is very keen to get started and we are already planning a fundraising event, which will be coming soon!

Huge thank you to Amy!

Amy Tinkler

 

 

 

 

 

 

 

We are absolutely delighted to announce our brand new Patron!

AMY TINKLER.

 

 

 

I have been speaking with Amy a lot over the last few weeks, chatting about Bradley, and his amazing legacy, and I am thrilled to say that she has very kindly agreed to be a Patron for the Bradley Lowery Foundation.
Bradley will be smiling from ear to ear to see Amy working along side us.
Amy is very keen to get started and we are already planning a fundraising event, which will be coming soon!

Huge thank you to Amy!

Brain Tumours

Brain Tumours

Brain tumours are the most common tumours that develop in children, they account for around 2 in 10 new cases of childhood cancer each year.

Children of any age can be affected and about 400 children in the UK develop brain tumours each year. Boys are affected slightly more often than girls.

Brain tumours can be either benign (non-cancerous) or malignant (cancerous).

Benign tumors are referred to as benign due to the appearance under the microscope of the abnormal cells that make up the tumour. It is unusual for Benign cells to spread into other areas. However, because even benign brain tumours can have serious effects if they continue to grow, it is important to take a more active approach to treatment than for benign tumours that arise outside of the brain.

Malignant Tumours are most likely to cause problems by causing pressure and damage to the areas around them and possibly by spreading to the normal brain tissue close by and sometimes more distant to the original tumour.

The main types that affect children are:

Medulloblastoma – The most common malignant brain tumour which usually develops in the lower part of the brain, the cerebellum. They may spread to other parts of the brain or into the spinal cord, and treatment must include the whole of this.

Others include –

Ependymoma

Diffuse intrinsic pontine glioma (DIPG) (brainstem glioma)

Embryonal tumours (formerly known as PNET)

Atypical teratoid rhabdoid tumour (ATRT)

High grade astrocytoma

Intracranial germ cell tumours

 

Most Common Symptoms

These will depend on the size of the tumour, where it is and how it affects that part of the brain. These are caused by the pressure inside the head being higher than it should be: a growing tumour may push normal brain out of the way or block the flow of fluid in the brain.

Symptoms include –

  • eye problems, such as abnormal eye movements, blurring or double vision
  • feeling very tired much more quickly than usual
  • feeling extremely sleepy (drowsy) for no reason.
  • fits (seizures) or tremors
  • feeling very irritated or losing interest in day-to-day things
  • changes in behaviour or emotional outbursts
  • repeated headaches (often worse in the morning)
  • vomiting (usually in the morning) or feeling sick
  • one-sided weakness of legs, arms or face
  • clumsiness or poor coordination (including difficulties with balance)

 

For further guidance about Brain Tumours speak to your General Practitioner.

Rhabdomyosarcoma

Rhabdomyosarcoma

Rhabdomyosarcoma is a type of sarcoma made up of cells that normally develop into skeletal (voluntary) muscles. These are muscles that we control to move parts of our body.

Sarcoma’s are cancers that develop from connective tissues in the body like fat, muscles, bones, blood vessels or linings of our joints.

The most common places where Rhabdomyosarcoma is found –

  • Arms and legs
  • Trunk (chest and abdomen)
  • The head and neck (such as near the eye, inside the nasal sinuses or throat, or near the spine in the neck)
  • Urinary and reproductive organs (bladder, prostate gland, or any of the female organs)

 

Most Common Symptoms

Rhabdomyosarcoma (RMS) can start nearly anywhere in the body.

The symptoms of RMS can be different in each person. The symptoms depend on where the tumour is, how large it is and if it has spread to other parts of the body.

  • Tumours around the eye can cause the eye to bulge out or the child to appear to be cross-eyed. Vision might be affected as well.
  • Tumours in the bladder or prostate can lead to blood in the urine, while a tumour in the vagina can cause vaginal bleeding. These tumours might grow big enough to make it hard or painful to urinate or have bowel movements.
  • Tumours in the abdomen or pelvis can cause vomiting, belly pain, or constipation.
  • Tumours in the ear or nasal sinuses can cause an earache, headache, nosebleeds, or sinus congestion.
  • When the tumour is in the neck, chest, back, arm, leg, or groin (including the testicles), the first sign might be a lump or swelling. Sometimes it can cause pain, redness, or other problems.

 

For further guidance about Rhabdomyosarcoma, speak to your General Practitioner.

Juvenile myelomonocytic leukaemia (JMML)

Juvenile Myelomonocytic Leukaemia (JMML)

 

Juvenile myelomonocytic leukaemia (JMML) is a very rare type of slowly developing (chronic) blood cancer that occurs in young children.

Leukaemia means a cancer of the blood forming system.

The blood forming system is the bone marrow, the soft inner part of your bones.

 

Although JMML has leukaemia as part of its name, the World Health Organisation (WHO) does not classify it as a leukaemia. It’s now included in a group of blood cancers called myeloproliferative and myelodysplastic disorders.

 

Symptoms of JMML

JMML is rare. And it develops slowly. This means that symptoms might develop over weeks or months.

In JMML, as the abnormal blood cells multiply in the bone marrow, fewer normal blood cells are made.

If there are not enough normal blood cells, the body cannot work normally.

Symptoms include nosebleeds and bleeding gums, looking pale, fever, being tired, lethargic and generally feeling unwell, being irritable – it might take a young child longer to settle, bruising easily, getting lots of infections, an enlarged liver and spleen – you might have noticed your child has jumped a nappy or trouser size quickly, pain in the tummy – if the monocytes have collected in this area, skin rashes, cough and wheezing.

 

For further guidance about Juvenile myelomonocytic leukaemia (JMML), speak to your General Practitioner.

Wilms Tumour (Nephroblastoma)

Wilms Tumor (Nephroblastoma)

Wilms tumours are a type of kidney cancer that mainly affects children. They develop from cells called nephroblasts and so are also called nephroblastomas.

Kidney cancer in children is rare but Wilms tumour is the most common type. Around 80 children are diagnosed with a Wilms tumour each year in the UK. Most common in children under 5 and very rare in adults.

Wilms tumours usually only affect one kidney (unilateral).

But in fewer than 10 out of every 100 children (less than 10%), it can affect both kidneys (bilateral)

 

Most Common Symptoms

Most Wilms Tumours are quite large when they are found.

Often bigger than the kidney itself.

Most of them have not spread to other parts of the body.

The most common symptom is a painless swelling of the tummy (abdomen). Parents might notice a lump in the tummy when bathing the baby, or if their child suddenly jumps a nappy size.

 

For further guidance about Wilms Tumor, speak to your General Practitioner.

 

 

Non-Hodgkin Lymphoma in children

Non-Hodgkin Lymphoma in Children

Around 95 children (aged 0 to 14 years) are diagnosed with non-Hodgkin lymphoma (NHL) in the UK every year.

Lymphoma means cancer of the lymphatic system. The lymph system is an important part of our immune system. It plays a role in fighting bacteria and other infections and destroying old or abnormal cells, such as cancer cells.

NHL is more common in boys than in girls, the reasons for this are unclear.

 

Most Common Symptoms

The most common symptoms of Non-Hodgkin Lymphoma are one or more, swellings of the groin, neck, throat and armpit, which is normally painless. The swelling of these areas are enlarged lymph nodes.

 

 

Burkitts Lymphoma

In some children with a type of NHL called Burkitt’s Lymphoma, enlarged lymph nodes cause one part of the gut to slide forward and become stuck in the next part of the gut.

This causes swelling and maybe a blockage. It can cause symptoms such as:

  • blood in the poo
  • high temperature
  • severe pain in the tummy area (abdomen)

 

For further guidance about Non-Hodgkin Lymphoma, speak to your General Practitioner.

 

Retinoblastoma

Retinoblastoma

Retinoblastoma is a type of eye cancer.

Retinoblastoma most commonly affects children under the age of 5. Around 45 children are diagnosed with retinoblastoma in the UK every year.

Children with both eyes affected are usually diagnosed in the first year of life. Those with one eye affected tend to be diagnosed a bit later, often between 2 and 3 years.

Although this can be very distressing and frightening for the child and their parents, more than 9 out of 10 children are cured.

  • ‘retino’ means from the retina
  • ‘blast’ means cells in early development
  • ‘oma’ means a group of cells, or a tumour

One eye can be affected, which is called unilateral retinoblastoma.

Bilateral retinoblastoma is when both eyes are affected.

 

Most Common Symptoms

The two most common symptoms of Retinoblastoma are –

  • The child may have a squint.
  • The child’s pupil may look strange.

The child may seem well in themselves and usually do not complain of any pain. The eye(s) affected may look like a cat’s eye that is reflecting the light, it may look white instead of the normal red when a picture is taken with a flash.

 

For further guidance about Retinoblastoma, speak to your General Practitioner.

Neuroblastoma

Neuroblastoma

Neuroblastoma is a rare cancer that affects children, mostly under the age of 5 years old.

Around 100 children are diagnosed with neuroblastoma each year in the UK.

It is very rare that it can develop in older children, teenagers and adults.

Neuroblastoma is a cancer that starts in a type of nerve cell called a neuroblast.

  • ‘neuro’ means nerve.
  • ‘blast’ means cells in early development.
  • ‘oma’ means a group of cells, or a tumour.

 

Most common symptoms in Neuroblastoma

Most common symptom is a lump in the tummy (abdomen). This could make your child’s tummy swell, causing discomfort or pain. Occasionally, it can affect the spinal cord. This can cause:

  • numbness
  • weakness
  • loss of movement in the lower part of the body.

Rarely neuroblastoma can appear as a lump in the neck, this might cause your child to be breathlessness or difficulty in swallowing.

Other symptoms depend on where the neuroblastoma starts in the body and whether it is just in one place or has spread to other parts of the body, this affects round half of children diagnosed with Neuroblastoma. If it does spread to other parts, other symptoms include, tiredness, high temperatures, loss of appetite.

 

For further guidance about Neuroblastoma, speak to your General Practitioner.

Childhood Acute Lymphoblastic Leukaemia (ALL)

Childhood Acute Lymphoblastic Leukaemia (ALL)

Acute lymphoblastic leukaemia (ALL) is the most common type of leukaemia diagnosed in children. The word Acute means that the Leukaemia can develop quickly.

ALL is a type of blood cancer that starts from young white blood cells called lymphocytes in the bone marrow.

ALL most common in children and young people than adults. ALL is most common in young children aged 0 – 4.

 

Most common symptoms in ALL

  • having a high temperature (fever) and picking up infections easily and often
  • bruising or bleeding easily or for no reason, from low platelets
  • breathlessness, looking pale or feeling very tired due to low red blood cells.

Not every child with Acute Lymphoblastic Leukaemia has all three of these symptoms before diagnosed.

Other symptoms include, pale skin, loss of appetite, feeling tired, bone pain, frequent infections, irritability, high temperature, swollen lymph glands.

 

For further guidance about ALL, speak to your General Practitioner.