Blog

Great afternoon at Sunderland for last game of the season. We had the pleasure of this lovely family with us today! Keep fighting Dylan xx
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I really hope that NICE pass the antibody to be giving on the NHS. Families are worried sick their child might not get potential life saving treatment.

I have wrote to the prime minster about this asking for her support. I am pleased to say I got a very nice letter back and she has arranged for me to meet Jeremy Hunt and Steve Brine to discuss this.

Please show your support 🙏🏻🙏🏻🙏🏻
Hi Guys can you please take a moment to read this? Bradley’s little fighters need your help to share it far and wide.

There has been a press release today regarding antibody treatment for children with Neuroblastoma called dinutuximab beta that is currently going through NICE to see if it can be given to our children on the NHS. This has been a long process so far and the information NICE have released today is not looking good. They believe that the drug is too expensive to give to our children and not cost effective enough, although it is only 0.05% of the yearly budget.

This antibody has been on trial for several years and is showing promising results. It is believed to give a child an extra 20% chance of survival. This may not seem a lot but speaking from my heart and experience when you think your child could die it is a life line.

Not only does it improve chance of survival it can also kill off stubborn tumours. Bradley still had disease when he went into the antibody treatment and none of us thought it was ever going to go but it did because of dinutuximab beta. Hearing the news my baby boy was cancer free was incredible hearing his voice shouting “yeaaaa the nasties have gone I kicked cancers butttt” was unbelievable and a memory I will treasure for the rest of my life.

This drug is being used in the USA, and other parts of Europe, I really hope all involved with the decision to approve this drug come to a prompt and effective solution as soon as possible.

New drugs for any childhood cancer are far and few between. We need to move forward with this not back. Do we really want to behind other countries in cancer treatment?? Or do we want to show the world we are just as good if not better???

What are your thoughts on this? Can you support our little fighters by commenting liking and sharing? Can you ask your friends and family to share to?

Together we can make a difference❤️❤️

How cute is my baby on here? He has s smile that could lighten any room 😇😇😇
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Today’s registration day is at NPower at Rainton House in Houghton le spring.

The process of signing up is a simple form and a swap. It really is that easy!

If your in the building make sure you pop down. If your not and would still like to sign up you can do it online here: https://www.dkms.org.uk/en/aheroforchloe #aheroforchloe
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BradleyLowerysFightAgainstNeuroblastoma
4th of May 2018 08:57 AM
To the staff at npower (Rainton Bridge), we are accompanying DKMS UK today from 10am for a registration day. Please please register it could save someones life like Chloe's DBA fight #aheroforchloe and Henry's Little Heroes and lots of other people! #dkms #bradleyloweryfoundation #workingtogether
It seems everyone is enjoying our little Throwback Thursdays so here’s another one for you all! ❤️

This is one of our favourite photos of Brad. What’s your favourite?
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We have some wonderful news!

Little Evan's pushchair has finally arrived. We would like to say big thank you for everyone's support towards Evan's campaign.

Comment a 👍🏻 to show your support
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Guess who got his ears turned on today,

Quote from Benji’s mam -

Today our little boy was activated!👂🏻👂🏻👂🏻 welcome to the noisy world of sound Benji!! We want to thank every single person who helped to get us here. It will help change Benji’s life xxx #benjismagicears
We are so thrilled for Benji and the family, take a look at the video on their page, hankies at the ready xxx
Today is the lovely little Siobhan’s 3rd birthday. Siobhan recently found out her cancer has returned meaning we need to raise even more funds for her treatment. ❤️

Siobhan’s fundraisers held a spring ball on Friday night to raise funds for her treatment in the USA. Lynn from The Bradley Lowery Foundation attended and it was a huge success!

We are pleased to announce that they raised £100,000. This is fantastic news!

Let’s use this opportunity to give her a birthday boost and get Siobhan even closer to her target needed for her treatment in the USA.

You can donate via just giving here: https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/siobhanmather
or text MATH01 £amount to 70070
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We are looking to plan the year ahead, we have had such a successful year so far and we would like to carry this on. We have lots of great ideas for some fundraising events, even Bradley got involved in his own fundraising by shaving off his hair because it was falling out off the Chemo ❤️

Is there any fundraising events you would like to see us do, or could you get involved by doing your own fundraising for The Bradley Lowery Foundation?
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Morning everyone, happy Sunday to you all.

Today is National Superhero day. Brad loved dressing up as a superhero.

Post a picture of your mini superhero’s below.

⬇️⬇️⬇️⬇️
#superhero #myhero
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Morning everyone, this is beautiful Eden.💗

Eden was diagnosed with Neuroblastoma on the 6th July 2017, when she was just 2.

Neuroblastoma is an aggressive form of childhood cancer which has an 80% chance of relapse within the first 2 months.

This fact is horrifying but the sad truth but we are all determined to do everything possible to minimise this from happening.

The cost of this treatment is a massive estimated £200,000. This will cover all medical costs.

If you are able to donate anything at all we would be so grateful. 💗 If you are unable to, simply give Eden’s page a like and share to follow her journey💗

To donate - Just Giving page here:
https://www.justgiving.com/campaigns/charity/thebradleyloweryfoundation/edeneyre
The Eden Eyre Fairy Project
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BradleyLowerysFightAgainstNeuroblastoma
28th of April 2018 06:55 AM
So sad to hear about the beautiful Alfie Evans I’m sending all my love to Alfie’s parents, they did everything they could for their little boy. RIP sweetheart, fly high with them angels and go have some fun with my baby boy 💜💜💜
Hi guys please take a few minutes to watch the beautiful Kira and her heart broken mum on the news. Kira is in desperate need of funds. If you can help in any way pop over to her page.
#savekira #kirathemachine
Around 7000 people in the UK are awaiting organ donation many people die waiting for their second chance at life. Miika’s family feared he would be one of those people. Finally after over a year of waiting little Miika received a heart transplant that saved his life.

You could help someone carry on living by signing up here:
https://www.organdonation.nhs.uk/register-to-donate/register-your-details/
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For everybody who follows the beautiful Siobhan will know that yesterday her family put a post on to say that Siobhan has relapsed, we are all absolutely devastated about this.

However, this just means that we need to raise more money and fight harder to make sure she receives the best possible treatment she needs to save her life.

Siobhans family and fundraisers have organised a Spring Ball tonight and I hope everyone has a fantasic time and raises lots of money for this lovely little girl 💗💗 #oursuperstar #teamsiobhan
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There’s #ThrowbackThursday of our beautiful boy to brighten up your week!
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I met Kira at a conference last year, she is a beautiful young lady who deserves a chance to live life. Kira is not with the Bradley Lowery Foundation but on occasions like this all that matters is the child and not the charity they raising funds with. Kira is in urgent needs of funds to save her life. Please if you can go over to kiras page and donate if you can’t donate just comment share and like this post to get her story out there. #togetherwecanmakeadifference
Ivy-Louise is having an important operation today, please keep her and her family in your thoughts. #YouCanDoThis #ChildhoodCancer #Support #Neuroblastoma

Ivy-Louise Fight Against Neuroblastoma
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We’ve had a few Birthdays over the last week,

The Bradley Lowery Lowery Foundation would like to wish Jack and Maddi a huge HAPPY BIRTHDAY to

Jack Hall who was 14 on Saturday Birthday on Saturday and Maddi Thurgood's who is 17 Today.

Let wish our smilers a huge Happy Birthday !!! ...



You can donate to Maddi by texting GENE96 £amount to 70070

Or Visit her Facebook page here: https://www.facebook.com/SaveOurMaddiAppeal/
And

You can donate to Jack by texting STEM94 amount to 70070

Or Visit his Facebook Page here: https://www.facebook.com/Jack-Halls-Journey-155742885095818/
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